Stream: FAIR
Topic: Findability: endpoint discovery, metadata registry.
Giorgio Cangioli (Dec 11 2020 at 08:47):
Yesterday I've been asked how we plan to address the endpoint discovery/findability of FAIR data by using FHIR...
This might be one of the first possible topics we could try to discuss :-)
Giorgio Cangioli (Dec 11 2020 at 08:48):
As you know one of the foundational principle of FAIR is the findability, that is, FAIR data should be easy to find for both humans and computers. Machine-actionable metadata play in FAIR a relevant role to enable the automatic discovery of relevant datasets and services...but turning this principle in FHIR can imply different things..
Giorgio Cangioli (Dec 11 2020 at 08:49):
If I try to figure out this may work I see three main possible approaches:
1) The 'simplest one' is "well-known" FHIR servers: the FHIR server(s) to be queried are somehow known and FAIR (meta)data are published in that/those "known" server(s).
Giorgio Cangioli (Dec 11 2020 at 08:50):
2) A second case may be a sort of special case of the 1st one (could we call it FHIR registry ?)
A well known FHIR server manages the FAIR metadata (To be clarified what does it mean in practice), that may act as gateway to access other FHIR servers where the FAIR data are stored.
Giorgio Cangioli (Dec 11 2020 at 08:50):
3) A third case might be a federation of these "registries" (whatever the federation could mean)
Giorgio Cangioli (Dec 11 2020 at 08:50):
Might be this classification a starting point ? Any suggestion ?
If so, we could try to analyze each case identifying known limitations, issues to be resolved, advantages, available solutions we can refer to,...
Ian D Harrow (Dec 15 2020 at 18:16):
How global, unique, persistent and (machine) resolvable are the identifiers of the FHIR standards? Is it useful to view the FHIR standards as a source of FAIR metadata?
Giorgio Cangioli (Dec 16 2020 at 09:51):
Hi @Ian D Harrow I don't know if this was your actual question :-), however, you can find more information about the FHIR resource identification here and about how resource identity can be managed here
Ian D Harrow (Dec 17 2020 at 10:13):
Thanks, that's a great help. I think the start should include evaluation of the FAIR Maturity Indicators for findability (and accessibility) against the existing FHIR resources, which can be automated.
Last updated: Apr 12 2022 at 19:14 UTC
