FHIR Chat · Connectathon: Maternal Health Research Track

Stream: research

Topic: Connectathon: Maternal Health Research Track

Rick Geimer (Nov 09 2021 at 15:21):

Thread opener for Connectathon 29

Rick Geimer (Jan 11 2022 at 14:13):

Connectathon track page
https://confluence.hl7.org/pages/viewpage.action?pageId=79517823

Rick Geimer (Jan 11 2022 at 14:15):

Postman REST client (for working with FHIR APIs)
https://www.postman.com/downloads/

Rick Geimer (Jan 11 2022 at 14:16):

OxygenXML Developer, a good XML/JSON editing tool
https://www.oxygenxml.com/#bidx-xml-developer

Rick Geimer (Jan 11 2022 at 15:43):

deceasedDateTime

Rick Geimer (Jan 11 2022 at 16:08):

http://connectathon.lantanagroup.com/fhir/Condition?patient=during-death

Rick Geimer (Jan 11 2022 at 16:35):

(deleted)

Rick Geimer (Jan 11 2022 at 16:48):

https://github.com/HL7/fhir-mmm-ig/blob/master/input/resources/valueset/PregnancyProcedureDelivery-mmm-SNOMED.xml

Rick Geimer (Jan 11 2022 at 16:48):

        <concept>
            <code value="177184002"/>
            <display value="Normal delivery procedure (procedure)"/>
        </concept>

Rick Geimer (Jan 11 2022 at 16:50):

performedDateTime

Rick Geimer (Jan 11 2022 at 16:53):

https://browser.ihtsdotools.org/?perspective=full&conceptId1=90049009&edition=MAIN/2021-07-31&release=&languages=en

Rick Geimer (Jan 11 2022 at 16:54):

https://browser.ihtsdotools.org/?perspective=full&conceptId1=5866003&edition=MAIN/2021-07-31&release=&languages=en

Meen Chul Kim (Jan 11 2022 at 17:18):

Patient postpartum-death: https://connectathon.lantanagroup.com/fhir/Patient/postpartum-death

Zabrina Gonzaga (Jan 11 2022 at 17:20):

Infant 1 postpartum: https://connectathon.lantanagroup.com/fhir/Patient/baby1post-death

Rick Geimer (Jan 11 2022 at 17:26):

http://hl7.org/fhir/terminologies-systems.html

Meen Chul Kim (Jan 11 2022 at 17:31):

Condition pregnancy-postpartum-death: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-postpartum-death

Rick Geimer (Jan 11 2022 at 17:39):

http://hl7.org/fhir/patient.html

Meen Chul Kim (Jan 11 2022 at 17:48):

Condition causing-end-of-pregnancy-postpartum-death: https://connectathon.lantanagroup.com/fhir/Condition/causing-end-of-pregnancy-postpartum-death

Rick Geimer (Jan 11 2022 at 17:50):

https://build.fhir.org/ig/HL7/fhir-mmm-ig/ValueSet-PregnancyCondition-mmm-ICD.html

Meen Chul Kim (Jan 11 2022 at 19:30):

I have a few calls in the afternoon, so my participation will be a bit spotty. I will catch up here!

Peter Muir (Jan 11 2022 at 19:33):

Synthea can not generate linkage between patients. However, could have a module for mothers and a module for infants, then link the ids in json manually (I think). Would be able to adjust pathway dispersion to generate a high volume of maternal deaths for testing.

Rick Geimer (Jan 11 2022 at 20:19):

111425004

Rick Geimer (Jan 11 2022 at 20:20):

Genital tract AND/OR pelvic infection following molar AND/OR ectopic pregnancy (disorder)

Rick Geimer (Jan 11 2022 at 20:20):

17433009

Rick Geimer (Jan 11 2022 at 20:21):

Ruptured ectopic pregnancy (disorder)

Rick Geimer (Jan 11 2022 at 20:22):

242247008
Collision of spacecraft with meteorite (event)

Meen Chul Kim (Jan 11 2022 at 21:48):

Updated with the ICD-10-CM code: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-postpartum-death

Meen Chul Kim (Jan 11 2022 at 22:05):

Condition-pregrancy-postpartum-death.json

Zabrina Gonzaga (Jan 11 2022 at 23:33):

Quick Summary: We successfully completed testing on Scenario 1 and 3 of the use cases. As of this evening, all 3 of the new use cases appeared in the measure report as expected. I would like to verify tomorrow that we don't have a duplicate count on the last sample patient (Accidental Death) since the count jumped from 7 to 9.
Tomorrow morning, we'll start with crafting the 3 samples we don't expect will appear in the denominator. Thanks again for all your participation and contributions today. Please see feel free to review the track page for details.

Peter Muir (Jan 12 2022 at 03:06):

I was playing with ClinFHIR GraphBuilder this evening as a rough build of a patient history.
MaternalComplicationsPatient.zip
gb2.clinfhir.com

Zabrina Gonzaga (Jan 12 2022 at 14:13):

ZULIP: https://chat.fhir.org/#narrow/stream/179290-research/topic/Connectathon.3A.20Maternal.20Health.20Research.20Track

Zabrina Gonzaga (Jan 12 2022 at 14:29):

Project Scope includes two initial use cases:

Pregnancy and subsequent death within 365 days: This use case is focused on women who died within a year (365 days) of a pregnancy regardless of cause of death or pregnancy outcome.

Hypertensive Disorders of Pregnancy: This use case focuses on women with a diagnosis of pregnancy-induced hypertension/gestational hypertension and post gestational hypertension diagnoses within one week of delivery.

Meen Chul Kim (Jan 12 2022 at 14:47):

Patient notpregnant-death-f: https://connectathon.lantanagroup.com/fhir/Patient/notpregnant-death-f

Meen Chul Kim (Jan 12 2022 at 14:51):

Patient deathtwoyears-death-f: https://connectathon.lantanagroup.com/fhir/Patient/deathtwoyears-death-f

Zabrina Gonzaga (Jan 12 2022 at 14:59):

Report Out: Please submit a few bullets on the following topics for our combined report out: 1)What did you find helpful? 2) Did you discover any issues? 3) What did you learn? 4) Do you have any screenshots you'd like to share? Also, I would like to list your name, Organization and role as part of the report. Please include how you would like us to represent you. If you also have a logo, please include. Please email reports to: Rick.geimer@lantanagroup.com and zabrina.gonzaga@lantanagroup.com

Meen Chul Kim (Jan 12 2022 at 15:10):

Condition pregrancy-deathtwoyears-death-f: https://connectathon.lantanagroup.com/fhir/Condition/pregrancy-deathtwoyears-death-f

Zabrina Gonzaga (Jan 12 2022 at 15:17):

@Meen Chul Kim success with the Condition, Pregnancy death two years!

Meen Chul Kim (Jan 12 2022 at 15:37):

Procedure delivery-deathtwoyears-death-f: https://connectathon.lantanagroup.com/fhir/Procedure/delivery-deathtwoyears-death-f

Ward Weistra (Jan 12 2022 at 15:46):

Hi @Zabrina Gonzaga @Rick Geimer, I took the latest package from the MIHR build-server IG and ran it through some testing with Simplifier.net. The findings are below. Please let me know if you need me to report them in Jira.

Example Library: FHIR Common Library has references to multiple libraries from Clinical Practice Guidelines, but the cpg package is not listed as a dependency for MIHR. As such the canonicals cannot be resolved:
image.png

The three RelatedPerson examples from MIHR refer to the profile http://hl7.org/fhir/us/vr-common-library/StructureDefinition/RelatedPerson-mother-gestational, which is from the 1.0.0 version of the Vital Records Common Profiles Library package. However, MIHR only has a dependency on the older 0.0.1 version of the package, which did not yet include that profile.
image.png

On the IG itself:

The search page seems to have some formatting issues
I wonder why the Downloads page has no link to download the package, like other recent publications. (I was able to grab it from the full IG download though)

Meen Chul Kim (Jan 12 2022 at 16:08):

Patient noabatementdoc-death: https://connectathon.lantanagroup.com/fhir/Patient/noabatementdoc-death

Meen Chul Kim (Jan 12 2022 at 16:11):

Condition pregnancy-noabatementdoc-death: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-noabatementdoc-death

Meen Chul Kim (Jan 12 2022 at 16:11):

@Zabrina Gonzaga Patient and Condition are in for Patient 7. Do you want me to create Patient 8 as well?

Zabrina Gonzaga (Jan 12 2022 at 16:21):

@Meen Chul Kim Yes, would you have time?

Zabrina Gonzaga (Jan 12 2022 at 16:21):

And Noabatementdoc Death successfully made it into the measure population!

Meen Chul Kim (Jan 12 2022 at 16:24):

@Zabrina Gonzaga, yes, I will report back here once I create Patient 8.

Meen Chul Kim (Jan 12 2022 at 16:29):

@Zabrina Gonzaga

Patient noabatementdoc-death-f: https://connectathon.lantanagroup.com/fhir/Patient/noabatementdoc-death-f
Condition pregnancy-noabatementdoc-death-f: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-noabatementdoc-death-f

Meen Chul Kim (Jan 12 2022 at 17:21):

PIH Patient #1
Patient pih-hypertension: https://connectathon.lantanagroup.com/fhir/Patient/pih-hypertension
Condition pregnancy-pih-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-pih-hypertension
Condition hypertension-pih-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/hypertension-pih-hypertension

PIH Patient #2
Patient preeclamsia-hypertension: https://connectathon.lantanagroup.com/fhir/Patient/preeclamsia-hypertension
Condition pregnancy-preeclamsia-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-preeclamsia-hypertension
Condition hypertension-preeclamsia-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/hypertension-preeclamsia-hypertension

PIH Patient #3
Patient complicated-hypertension: https://connectathon.lantanagroup.com/fhir/Patient/complicated-hypertension
Condition pregnancy-complicated-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/pregnancy-complicated-hypertension
Condition hypertension-complicated-hypertension: https://connectathon.lantanagroup.com/fhir/Condition/hypertension-complicated-hypertension

Zabrina Gonzaga (Jan 12 2022 at 18:15):

Greetings All: We are closing down the zoom share/link for the day and will be working on our report out. @Meen Chul Kim I am happy to launch the zoom later today to continue working through Scenario 3/Use Case 3 if you would like. I'll keep an eye on the zulip chat.
If anyone would like me to include any bullet points or screen shots in the report out, please send them to me by 1 pm CT today (2pm ET). Thank you for your participation. My email: zabrina.gonzaga@lanatanagroup.com

Peter Muir (Jan 12 2022 at 18:30):

Maternal-Complications-Original-Pregnancy-w-HTN.json

Peter Muir (Jan 12 2022 at 19:07):

I saved this to ClinFHIR as well
Maternal-Complications-Original-Mother-w-Twins.json

Meen Chul Kim (Jan 12 2022 at 19:37):

@Zabrina Gonzaga I am back and happy to work on Use Case 3! (Or, once you update the wiki page and ping me, I will work on creating resources).

By the way, have we figured why Patient 3 of Use Case 2 doesn't show up? >> Huh, it still doesn't show up.

Zabrina Gonzaga (Jan 12 2022 at 21:01):

Hi @Meen Chul Kim . We didn't figure out Patient 3 of Use case 2 yet.

Zabrina Gonzaga (Jan 12 2022 at 21:02):

I was heads down on the report but happy to jump on and continue to try to figure this out if you are free. Let me know. No worries if you are finishing up for the day.

Peter Muir (Jan 12 2022 at 21:05):

MotherTwins-PregnancyHTN.zip

Zabrina Gonzaga (Jan 12 2022 at 21:11):

Thanks @Peter Muir

Meen Chul Kim (Jan 12 2022 at 21:15):

@Zabrina Gonzaga, I am happy to discuss. Do I jump on the initial Zoom link? I have a hard stop at 5, but am happy to figure out what we want to achieve in the meantime.