Stream: patient empowerment
Topic: enrollment to a health/research program
Koray Atalag (Nov 30 2020 at 11:25):
Hi folks, I'm looking for guidance re a use case for enrolling patients to mHealth / wellness programs as well as research studies. My real-world requirement is for an EMR to be able to tell our ePRO platform (patient reported outcome) to add a patient to a predefined project (e.g. Hip Replacement) so that a series of questionnaires and educational material can be sent to patients. To clarify, the actual content and scheduling of these touch-points are defined in the projects so there is no additional information needed during the enrollment - just the project ID of the program the patient is being admitted to. One exception is the ability to set a baseline data collection date (probably can be others but for future).
I reckon this sort of enrollment process should be a pretty common scenario so hopefully a solution exists!
I've been advised to use the Task resource in some former discussions.
Comments/Feedback/Advice welcome
CC @Daniel Thomson @Lloyd McKenzie
Daniel Thomson (Dec 02 2020 at 23:16):
@Koray Atalag This is the info we store
enrolment.JPG
Initially this service was created to store GP enrolments for funding in NZ (so it's essentially storing the relationship between a patient (NHI ID) and the enrolling organization (Practice as Org ID)), + some metadata. We also store info on enrolments for entitlement programs (e.g. a Community services card, prescription subsidy card etc).
Both types of enrolment were designed to be general enough to be extensible/re-usable for any kind of health program enrolment. It's not on our immediate workplan though to re-do this in FHIR, so all I've been doing is keeping an eye on the FHIR resources / others wanting to do similar things so far to see if there's any progress on how we might do it in FHIR once we get there.
Lloyd McKenzie (Dec 03 2020 at 00:18):
I think we'd discussed possibly expanding the scope of EnrollmentRequest/EnrollmentResponse and/or using List to manage your list of enrollemd members. Task would be how you'd ask someone to complete a Questionnaire.
Koray Atalag (Dec 03 2020 at 10:25):
Thanks @Daniel Thomson cool stuff! I agree it is an extensible model that could cater for a wide range of similar use cases.
Today I had a chat with @Peter Jordan and he suggested to go with R5 and help rescope EnrollmentRequest and EnrollmentResponse. I'll get in touch with the relevant Work Group (Financial Management) to help develop an FMM Level 0 resource that could be usable in jurisdictions outside US.
Koray Atalag (Dec 03 2020 at 10:28):
Lloyd McKenzie said:
I think we'd discussed possibly expanding the scope of EnrollmentRequest/EnrollmentResponse and/or using List to manage your list of enrollemd members. Task would be how you'd ask someone to complete a Questionnaire.
Yes we did and thanks for the advice. As per above I think I'll go down this path. Can you point out to the right guy(s) in that WG - otherwise I'll just contact the co-chairs / post in their stream here
Lloyd McKenzie (Dec 03 2020 at 15:44):
@Paul Knapp
Daniel Thomson (Dec 03 2020 at 20:42):
Koray Atalag said:
Thanks Daniel Thomson cool stuff! I agree it is an extensible model that could cater for a wide range of similar use cases.
Today I had a chat with Peter Jordan and he suggested to go with R5 and help rescope EnrollmentRequest and EnrollmentResponse. I'll get in touch with the relevant Work Group (Financial Management) to help develop an FMM Level 0 resource that could be usable in jurisdictions outside US.
Sounds good. Happy to contribute or share more detail of any of the NZ Ministry of Health's experience / use cases with enrolment. :+1:
Last updated: Apr 12 2022 at 19:14 UTC
