Stream: patient empowerment
Topic: Use case: data quality (urgent)
Dave deBronkart (Oct 13 2019 at 15:11):
Twitter @GraceCordovano is a patient advocate in the traditional sense - she has many horror stories of data quality problems. We should tell people to anticipate this when they start to get their data .... meanwhile, this shows IMO why it's URGENT to get this data examined and fixed.
Here's a long thread with some of her anecdotes, and others in replies.
https://twitter.com/GraceCordovano/status/1182664117074780161
Does this happen in other countries?
1) So you get a copy of your medical records & dive in, reading line by line, trying to make sense of your new lung #cancer diagnosis. “Wait a second, this doesn’t sound right. This is a mistake. I don’t have a history of a heart condition & I don’t smoke cigarettes. #PtExp https://twitter.com/GraceCordovano/status/1182664117074780161/photo/1
- Enlightening Results (@GraceCordovano) Grahame Grieve (Oct 16 2019 at 12:42):
yes. I've heard of it happening here in Australia though it's probably not quite as frequent since there's no financial incentive
Last updated: Apr 12 2022 at 19:14 UTC
