Stream: patient empowerment
Topic: Patient access to EHR
John Moehrke (Feb 04 2021 at 18:22):
@Josh Lamb this would be a good place to ask about Patient ability to access EHR, and your question about any IG that might be discussing patients being an author of data -- aka Patient Generated Health Data (PGHD) (sometimes also referred to PGD, and Self Entered Information (SEI))
John Moehrke (Feb 04 2021 at 18:23):
with ONC position https://www.healthit.gov/topic/scientific-initiatives/patient-generated-health-data
Josh Lamb (Feb 04 2021 at 18:24):
Thanks, I get lost in the threads sometimes.
John Moehrke (Feb 04 2021 at 18:24):
with currently only Read-Only expectations in most cases... such as USCDI, aka US-Core, etc...
John Moehrke (Feb 04 2021 at 18:26):
as currently implemented by EHR vendors (Cerner https://fhir.cerner.com/, Epic https://open.epic.com/Interface/FHIR, Allscripts https://developer.allscripts.com/Content/fhir/, etc...)
John Moehrke (Feb 04 2021 at 18:26):
as for why not??? Well, that is a policy statement. That is not a statement of Interoperability specification.
John Moehrke (Feb 04 2021 at 18:27):
ONC would be better positioned to declare a policy... Declaring policy is not the role of HL7.
John Moehrke (Feb 04 2021 at 18:28):
but... you already know that Patient Empowerment is trying to change that... we are resource limited, so we are focusing on some high impact things like Patient Correction Requests...
John Moehrke (Feb 04 2021 at 18:31):
Some of us want to get other projects going, like my favorite to define a means by which the patient can see all the access, use, and disclosures of their data... but we are not infinitely resourced, so I wait patiently... while doing some of the pre-work myself http://build.fhir.org/ig/JohnMoehrke/BasicAudit/branches/main/index.html
We must work together on the highest priorities as determined by consensus, even if they are not solutions to all problems or even our favorite.
Josh Lamb (Feb 06 2021 at 21:34):
This is great stuff @John Moehrke. Thanks for working on this! I agree that auditing info exchanges is a priority.
Last updated: Apr 12 2022 at 19:14 UTC
