Stream: patient empowerment
Topic: Organizing your health record
Dave deBronkart (Oct 23 2019 at 15:03):
There's a relevant thread in #social on organizing your health record, which has led not surprisingly to the need for the patient to be the curator and resolver of disputes. As we here all know, some patients are ready and armed, eager to do that. Others aren't, and I think it'd be great if we could draft a "what you need to know" helper document.
It will need to be iterative, because we really don't know the whole catalog of challenges people will encounter, but that's not a problem, eh?
Let's consider this in our list of possible projects.
Lloyd McKenzie (Oct 23 2019 at 15:35):
I'm not sure that's the outcome. The patient is one of the possible curators. They won't necessarily always be able to (or appropriate to) fill that role.
Dave deBronkart (Oct 23 2019 at 15:47):
I'm going to agree with you that I'm off-target, @Lloyd McKenzie :slight_smile: I'm at a conference listening to Susannah Fox speak, and used half my brain to type this.
I do think we should develop the tool I proposed, but now I also think we need to consider who else might play that role. The obvious related one is the family caregiver (which I consider synonymous with "patient" in this sense). Who else?
Lloyd McKenzie (Oct 23 2019 at 15:49):
Could be GP. Could be a nurse practitioner or long term care staff. For meds, can be a pharmacist. We may see AI playing a role here too. Challenge is that regardless of who does it, in some cases, they might be the wrong person (because of skills, bias or both)
Last updated: Apr 12 2022 at 19:14 UTC
