Stream: patient empowerment
Topic: LongCOVID keynote, Tuesday at DevDays?
Dave deBronkart (Nov 15 2020 at 18:43):
All, to catch as broad an audience as possible I posted this on #Social, though it's obviously in our wheelhouse. If you can help, please go there.
LongCOVID keynote, Tuesday at DevDays?
Here's the start of the post:
Hi all - I'm working with Hannah Wei on her keynote Tuesday at the start of DevDays about Long COVID, "long-haulers," etc, and their battle against information silos that impede progress.
I would love to have some feedback from folks who can help connect the dots from their needs to what the FHIR community (especially DevDays) might provide ...
Dave deBronkart (Nov 17 2020 at 14:38):
Note to self: In lounge chat @Hernan Burgos of Smile CDR notes that CENS.CL (from Chile) may be of use in considering how to facilitate taking data from the LongCOVID community and turning it into something "FHIR-computable," whatever that means.
Virginia Lorenzi (Nov 21 2020 at 05:54):
@Hannah Wei loved your talk - we would love to have you join us in the HL7 Patient Empowerment work group!
Dave deBronkart (Nov 21 2020 at 13:22):
Me too of course but her community is in the middle of a live, active wildfire ... I think it will be up to us (FHIR community at large) to figure out what we can do to make tools for them
Dave deBronkart (Nov 24 2020 at 01:58):
I've posted Hannah's keynote. I'll be adding lots of links to it for supporting info but I wanted to get it out - this stuff is time sensitive. 15 minute video.
https://www.epatientdave.com/2020/11/23/longcovid-patient-researcher-hannah-wei-kicks-off-fhir-devdays/
Last updated: Apr 12 2022 at 19:14 UTC
