Stream: patient empowerment
Topic: COVID Self-Tracking Worksheet
Abbie Watson (Mar 20 2020 at 08:00):
I just saw the following post from the Distance Resistance group on Facebook.
https://www.facebook.com/groups/distanceresistance
A friend has the virus and she’s too sick to sit in front of a computer to track her symptoms, fever, etc., so she needs a quick chart - something she can print/can fill in manually - one sheet per day (24hrs Data points she wants to track by the hour:
Temperature
Blood oxygen
Heart rate
Blood pressure
Emotional state -scale 1-10
Pain/Discomfort-scale 1-10
Cough - scale 1-10
New symptoms
Daily weight
Food intake
I looked online but haven’t seen a chart contenting all these field. Are you aware of anything that she can use?
Thquote
I suspect there are a lot of people out in the world wanting to track these sorts of things right now, and there might be some utility in providing a reference Questionnaire and mappings to the associated Observations and LOINC/SNOMED codes. It's a nice little patient story and insight in how people are responding and thinking about self tracking from non-medical professionals.
Kvetch: I wish we could spend Thursday conference call meetings talking about topics like this, instead of rehashing the charter (yet again).
Jose Costa Teixeira (Mar 20 2020 at 08:07):
Yes! Use the calls to work on patient enabling profiles.
Dave deBronkart (Mar 20 2020 at 13:10):
@Abigail Watson Thank you for that! I knew people would start coming up with things they can do with or without institutional support. I've just joined that group. Here's that thread. Somebody did post a COVID-19 health diary in response - it's a PDF!! Someone more technical than me should look into whether it can be made online (for those who want to) and (optionally) aggregated for the epidemiologists.
Debi Willis (Mar 20 2020 at 13:26):
Dave, the Facebook link seems to be broken. Can you check it?
We will have our symptom tracker out very soon. We’re just finishing up the COVID-19 self assessment and already working on the symptom tracker. Several engineers head down focused.
Debi Willis
Dave deBronkart (Mar 20 2020 at 15:56):
Glad to hear about your symptom tracker!
The FB link works for me - I'm guessing since it's a private group you may need to join the group first. https://www.facebook.com/groups/distanceresistance/
Abbie Watson (Mar 20 2020 at 16:48):
Distance Resistance was the group that created and registered the StayHome,SaveLives #QuaranTeam Frame on Facebook.
If you click 'Update' on your photo, go to Frames, you can select the #QuaranTeam frame, and literally set a timer for 2 weeks. And your profile pic will let everybody know you're quarantining and will remind you when you're 14 days are done. It's a workaround using a feature that wasn't intended for quarantining, but Distance Resistance managed to figure out a $0.02 hack on the Facebook infrastructure that lets 2 billion people have a quarantine timer.
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Last updated: Apr 12 2022 at 19:14 UTC
