Stream: patient empowerment
Topic: CDT privacy framework
Virginia Lorenzi (Sep 21 2020 at 23:20):
This might be of interest to our members: https://cdt.org/press/cdt-and-ehi-release-draft-consumer-privacy-framework-for-health-data/#:~:text=Today%20the%20eHealth%20Initiative%20%26%20Foundation,rules%20that%20should%20govern%20them.
Jose Costa Teixeira (Sep 22 2020 at 21:47):
quick diagonal reading, says "A participating entity collecting, disclosing, or using consumer health information must limit the collection, disclosure, or use of consumer health information to only what the consumer has expressly consented to."
How is this applied to care provision?
Brendan Keeler (Sep 23 2020 at 01:23):
No penalties or incentives, but significant self-voluntary cost to implement (and disadvantage relative to competition). It's also extremely broad in the companies it might cover. Seems like it will take regulation to be used/relevant?
Last updated: Apr 12 2022 at 19:14 UTC
