Stream: terminology
Topic: Common English
John Moehrke (May 21 2020 at 14:21):
Is there a way to indicate a concept display text for use with "common english", as in not medical-speak, but normal human. I don't find a .language that seems clear as many medical terms display do indicate they are in en-US, but are clearly medical-speak (e.g. "Axilla" vs "Under-Arm")
Daniel Vreeman (May 21 2020 at 20:22):
@John Moehrke Some discussion at the tail-end of this thread....https://chat.fhir.org/#narrow/stream/179202-terminology/topic/ValueSet.20.24expand.20questions
John Moehrke (May 22 2020 at 11:13):
I am not getting a good understanding of how this should be done. I get that historically our vocabulary efforts have been for clinicians, but we must recognize that, especially with FHIR, data are being more exposed to patients. I am not looking for a data representation, but rather a way to provide alias display values in CodeSystem / ValueSet for a human that is not medically trained. (CodeableConcept already has .text that can be used for some of this)
Peter Jordan (May 22 2020 at 21:36):
Some national editions of SNOMED CT (e.g. New Zealand) now contain 'patient-friendly' terms. These can be provided in FHIR ValueSets in response to $expand operation requests (using the includeDesignations and designation parameters). However, a standard way to populate the includDesignations (token) parameter is still a matter of some debate among the Vocabulary WG and the Terminology Server implementers. My Server also returns 'patient-friendly' SNOMED CT terms (where they exist - there are only 170 at present) in response to a CodeSystem $lookup operation request.
John Moehrke (May 22 2020 at 22:21):
so, in those cases. How is the patient-friendly designated?
Peter Jordan (May 22 2020 at 22:47):
Are you asking how and by whom patient-friendly SCT terms are developed, how a client application might determine when to use them or how they can be identified as such in a response to a FHIR API request?
Last updated: Apr 12 2022 at 19:14 UTC
