Stream: genomics
Topic: Improving Usability of IG (Topic from May 2021 WGM)
Arthur Hermann (May 25 2021 at 20:29):
Great discussion today!! We had suggested that people look for IGs that have good clear documentation in them (perhaps we want to create a Google doc/spreadsheet to capture them), but to start us off.. I very much like the US Core IG.
US Core: http://hl7.org/fhir/us/core/
US CORE Profile (Note: all of their profiles use a very good standard template - this is an example): http://hl7.org/fhir/us/core/StructureDefinition-us-core-diagnosticreport-lab.html
Also Mcode is good:
Mcode - newly balloted home page: http://hl7.org/fhir/us/mcode/2021MAY/index.html
Mcode - Extended example, patient journey: http://hl7.org/fhir/us/mcode/2021MAY/examples.html
Jamie Jones (May 25 2021 at 22:45):
regarding our ability to improve the usefulness of the 'detailed descriptions' tabs: here's a mockup of some of what we can do there for one component:
image.png
Most of the info from the glossary page could be listed here in the structuredefinition (and we should likely rework the glossary per FHIR#32416)
Arthur Hermann (May 25 2021 at 23:13):
Totally agree the glossary is not one :upside_down: if anyone knows of an appropriate glossary we could legally leverage, or wants to begin compiling one..that would be great!
Karen Fairchild (May 27 2021 at 21:54):
NIH - most of that data is not copyrighted as it is funded with US tax dollars. See https://www.cancer.gov/publications/dictionaries/genetics-dictionary Also uploading an older CLinVar data dictionary that may be of help ClinVarDataDictionary.pdf All of this is public domain so no copyrights.
Arthur Hermann (Jun 09 2021 at 18:25):
Sorry that I had to miss this week's meetings due to extended team meetings which I needed to attend. @Kevin Power @Jamie Jones @Mullai Murugan , I am happy to work on the ballot comments which could/should be related to "Improving Usability" of the IG. I would like to understand if there is a way to create Parent/Child Jira tickets so that we might have a master Jira around this subject and then have a number of discrete child tickets. Would also like input on whether that would make it easier to manage these tickets, or just add complexity. Finally, I want to determine how we kick-off the work to improve the IG (some of the first steps were discussed, and as I remember, voted upon, during the WGM). Please let me know what you think is the best way to move this work and discussion forward ASAP.
Arthur Hermann (Jul 21 2021 at 22:54):
I have just finished reviewing the entire "home Page document, which can be found here: https://docs.google.com/document/d/1u5k9rK66Df3BiLMqzdSNBZWENEXvZehEtZPOKiA0NVA/edit?usp=sharing . I integrated the changes that were requested during our excellent discussion last Tuesday, and made a number of small edits to enhance "readability". I have left a number of comments to the Working Group on the document - and want your input... please! Since our intention was to take a vote on approving the content of this page, for movement into the continuous build of the IG - This coming Tuesday... please take a look, read the comments and provide suggested edits or responses. https://media0.giphy.com/media/ehVD71SQYsCHWrWgvs/giphy.gif?cid=c623cb35dy30bmrz4cez2nbqr78mcel4pgdmpss2ps054clh&rid=giphy.gif&ct=g
Patrick Werner (Jul 22 2021 at 12:58):
Thanks Arthur! I set myself an appointment to have a look this weekend
Last updated: Apr 12 2022 at 19:14 UTC
