Stream: united states
Topic: US Core Observation profiles
Craig Newman (Jun 03 2020 at 16:37):
I'm working on a US Realm birth defect reporting IG and I'm creating a number Observation profiles for non-lab result things like pregnancy outcome, mother's education level, etc. I'm getting a publisher warning that I should be basing these on a US Core Observation profile, but it doesn't seem right to use the lab results profile. Is there a more generic US Core Observation profile that I'm missing and should be using, or for non-lab/non-vitals profile am I OK to ignore this error.
Lloyd McKenzie (Jun 03 2020 at 17:26):
The expectation is that you'll come and chat with U.S. Realm about why you're not using their profiles - but once you've got their agreement that the existing US Core profiles aren't appropriate for your use-case, it's fine to add them to the ignoreWarnings.txt file
MaryKay McDaniel (Jun 04 2020 at 05:14):
@Craig Newman and @Lloyd McKenzie
FYI: I believe there is a new process. I was asked to create JIRA tickets in those instances a US CORE profile will not/could not be used for a US IG. I believe they are looking to document the 'due diligence' and any future changes needed.
Lloyd McKenzie (Jun 04 2020 at 05:19):
@Brett Marquard What should the tickets say? Many of the times when there's a choice not to use U.S. Core, it's not because U.S. Core should be changed, it's just not appropriate. For example, Da Vinci doesn't use US-Core Patient for non-identifiable patients - but we certainly wouldn't want to recommend dropping Patient.name or identifier as mustSupport (or required) in the current profile. Nor do we necessarily expect US Core to add an anonymized patient profile
Brett Marquard (Jun 04 2020 at 15:26):
Thanks folks, this is a timely request. For CARIN RTBC @Frank McKinney is helping blaze this trail. He logged these US Core variance requests. We had a brief discussion on these in US Realm SC this week, and will hopefully finalize approval/direction for this set on the Cross Projects Work Group next Thursday.
Brett Marquard (Jun 04 2020 at 15:26):
@Lloyd McKenzie What field in JIRA would be best to note this is a 'Variance' Request? Grouping?
Lloyd McKenzie (Jun 04 2020 at 16:38):
The FHIR Specification Feedback project is intended for requesting changes to the spec. I suppose you could use "question" and just have an answer saying 'that's fine'..
Brett Marquard (Jun 04 2020 at 16:50):
This is a request to change to US Core/variance request
Brett Marquard (Jun 04 2020 at 16:51):
+requirement for future US base
Lloyd McKenzie (Jun 04 2020 at 17:19):
Is it? Would U.S. base support anonymized access? Would it support veterinary? I expect there will still be US profiles that fall outside the declared scope of "US Base"
Brett Marquard (Jun 04 2020 at 18:04):
Folks can request those changes, and then we can accept/reject.
Brett Marquard (Jun 04 2020 at 18:05):
I am not quite ready to make a judgement on exactly what is in/out of base. I just know constraints will be quite loose
Chris Moesel (Jun 04 2020 at 18:12):
Ooooh.... Maybe I should give FHIR-19919 a go again... ;-)
Brett Marquard (Jun 04 2020 at 18:18):
eek, I guess US Core flood gates could open. Did you publish profiles in separate guide?
Lloyd McKenzie (Jun 04 2020 at 18:19):
I wouldn't feel comfortable asking for a change that I know already is outside the scope of US Baseline and that, in practice, I wouldn't want to be in US Baseline.
Brett Marquard (Jun 04 2020 at 19:23):
US Baseline. Do you have a working scope for the US Baseline?
Chris Moesel (Jun 04 2020 at 20:02):
@Brett Marquard -- no, I don't have any profiles for that actually. It's more that I have CQL that queries for assessment observations, and it's annoying that vendors won't expose any observations in their FHIR interfaces except those specified by US Core.
Lloyd McKenzie (Jun 05 2020 at 03:29):
I don't know what you've landed on for the US baseline scope. But I do know that you'll have to have boundaries - if you don't, you won't be able to say or enforce anything useful...
Brett Marquard (Jun 05 2020 at 16:47):
Totally agree. I just thought your last Zulip implied you knew those boundaries!
Lloyd McKenzie (Jun 05 2020 at 16:48):
I have some assumptions and thoughts about what I think is reasonable/appropriate/likely :)
Last updated: Apr 12 2022 at 19:14 UTC
