Stream: australia
Topic: Indigenous Australian Considerations
Grahame Grieve (Aug 14 2019 at 08:25):
I attended a workshop on Indigenous Informatics at HIC today, and then had a discussion with Ray from CSIRO Herston who's working on Indigenous health issues.
Coming out of those discussions, I have the following proposal for consideration:
We should add an Indigenous Australian affairs appendix to the Australian Base FHIR IG. It would contain:
- the Name status extension
- the Australian language value set that covers native languages
- A standard social determinents of Health questionnaire developed with an appropriate indigenous community
- a note about how to tag resources, to mark that they contain information derived from or pertinent to indigenous communities (support various custody and provenance concerns that a strong in the existing community)
Grahame Grieve (Aug 14 2019 at 08:25):
Note that the first 2 things already exist; we're not adding them.
Grahame Grieve (Aug 14 2019 at 08:27):
the questionnaire part depends on finding an appropriate community to leverage existing work (e.g. 715). The rough idea is that we would work towards a common representation of a common SDoH questionnaire which would lead to more consistent data reporting infrastructure, which is clearly an operational challenge now. We have an opportunity to build community that will make a real difference here
Grahame Grieve (Aug 14 2019 at 08:28):
note that there's plenty of work to do on this proposal on several fronts, so I'm just raising the idea at the moment
Grahame Grieve (Aug 14 2019 at 08:45):
btw, does anyone know if there's a value set for which people you come from? and your skin name?
Last updated: Apr 12 2022 at 19:14 UTC
