FHIR Chat · Australian Organ Donor Register · australia

Stream: australia

Topic: Australian Organ Donor Register

Richard Townley-O'Neill (Nov 13 2017 at 07:05):

This follows on from Organ Donor Registry records

Here is a different STU3 design for entries in the Australian Organ Donor Register (AODR).
It uses one fewer extensions, instead using Consent.except.

We have interpreted the AODR as including 2 types of proposition available for each consent entry:
1. patient permits/denies donation in general and
2. patient permits/denies donation for each of a set of organs, there are 9 items.
When the person denies donations in general, type 2 propositions are not recorded.

Preferred design
This solution uses the base FHIR resource where it aligns closely with the requirements and uses an extension elsewhere.
• For type 1 propositions use a modifier extension (extension-donationdecision) that contains a coded value and
• For type 2 propositions use Consent.except, with the relevant organ in Consent.except.data(as BodySite).code.

Recording an instance:
• To refuse to donate anything, one records “Deny” in extension-donationdecision, and nothing more (about the decision).
• For permitting donation, one records “Permit” in the extension, and extra details for each organ in except.data.

Notes
1. While some of the FHIR documentation supports our making extension-donationdecision a modifier extension, as it has vital information, other parts suggest otherwise, as it does not change anything else. I think that the docco needs some work.

Richard Townley-O'Neill (Nov 13 2017 at 07:08):

The structure definition for the consent profile
consent-aodr.xml

The structure definitions for extensions and other profiles

• extension-donationdecision.xml
• bodysite-aodr.xml
• extension-dateinitialregistration.xml

Richard Townley-O'Neill (Nov 13 2017 at 07:13):

Some examples

• aodr-example-notwillingtodonate.xml
• aodr-example-willingtodonate.xml
• aodr-example-willingtodonatesome.xml

Jens Villadsen (Nov 13 2017 at 13:05):

@Allan Hansen and @Thor Schliemann something you guys should check out?

David Pyke (Nov 14 2017 at 18:21):

The structure definition for the consent profile

This looks excellent. I'm going to bring it in front of the FHIR Consent group on Thursday (1pm ET) and see if they have any comments.

Richard Townley-O'Neill (Feb 03 2021 at 03:36):

This was published, in 2018, at https://developer.digitalhealth.gov.au/sites/default/files/specifications/clinical-documents/ep-2746-2018/dh-2738-2018/index.html

Last updated: Apr 12 2022 at 19:14 UTC