FHIR Chat · Family History: Documentation to the negative · implementers

Stream: implementers

Topic: Family History: Documentation to the negative


view this post on Zulip Daniel Tam (Nov 09 2021 at 23:25):

Hi, we're looking at using FHIR for Family Member History (https://www.hl7.org/fhir/familymemberhistory.html)

The resource looks well-designed for identifying family history where a condition was documented.

However, our clinicians are also interested in explicitly documenting on the negative, for example "No family history of cervical cancer", or "No family history XYZ".

I was wondering how people are approaching that? I was thinking that we could use the .code field, and include my organization's local / internal codes related to "No family history of XYZ". This would be akin to our internal valueset.

Any thoughts on this approach, or recommendations otherwise? Or is there another resource or extension I should consider?

view this post on Zulip Richard Townley-O'Neill (Nov 10 2021 at 04:46):

HL7 AU Base uses that type of approach in lists.
It has an Observation profile AU Assertion of No Relevant Finding with codes from the ValueSet Assertion Of Absence

view this post on Zulip Lloyd McKenzie (Nov 15 2021 at 04:28):

Right. Observation is the way of capturing high level generalizations about "family history of X present" or "no family history of X present". FamilyMemberHistory is for when you want to know exactly who had what (and when, and what the outcome was) to get a more nuanced view.


Last updated: Apr 12 2022 at 19:14 UTC