Stream: implementers
Topic: Donation/transplant procedure
Niek van Galen (Aug 07 2020 at 12:57):
Hi all,
I'm working on a standardization project for the Dutch Transplant Foundation and we are leaning towards FHIR model and it's resources (also to prepare the systems for FHIR data exchange in the future).
Both donor and recipient can be captured in the Patient resource, both the donation and organ transplant procedures in the Procedure resource and so there are more conventions to think of. However, I am struggling on an appropriate manner to couple the donor and the recipient. For instance: a living person is willing to donate a kidney, gets matched with a certain recipient. We want to capture that match, as well as the relationship between the donor and the recipient for that specific match, and reference the organ, observations etc.
I am curious about your opinion and/or experiences regarding this topic.
Best,
Niek van Galen
Lloyd McKenzie (Aug 07 2020 at 14:08):
@Michelle (Moseman) Miller
Michelle (Moseman) Miller (Sep 17 2020 at 14:47):
Patient Care discussed this last week (sorry about the delay):
- Relationship between donor and recipient is indirect via Procedure and BiologicallyDerivedProduct. Specifically, the Procedure has subject of recipient patient. BiologicallyDerivedProduct.collection.source has a Reference to the donor patient. These resources are related via Procedure.used.
- Before the procedure is done, there would be a DiagnosticReport (containing HLA-typing)
There is more discussion needed for sure, but that's where we landed last week.
Manisha Mantri (Sep 20 2021 at 07:02):
Hi @Niek van Galen , @Michelle (Moseman) Miller ,
Are there any updates on this topic? I am also interested to know how the whole workflow can be captured through FHIR. A procedure with a linked BiologicallyDerivedProduct as an outcome and again a procedure for the receiver with linkage with the same BiologicallyDerivedProduct. I could see the 'Transplant, Transfusion, and Grafts on FHIR' project but could not find any further information. Any help is highly appreciated.
Niek van Galen (Sep 20 2021 at 08:19):
Hi @Manisha Mantri, no updates from my side.
Last updated: Apr 12 2022 at 19:14 UTC
