Stream: implementers
Topic: Basic withholding of consent
Rik Smithies (Feb 13 2017 at 14:34):
I want to express a very broad "no consent to use my data for research purposes".
It applies to all data, by anyone. So a lot of things can presumably default.
How would this be? :
<Consent xmlns="http://hl7.org/fhir">
<status value="active"/>
<patient>
<reference value="Patient/1234"/>
</patient>
<!--consentingParty> omitted, defaults to patient? -->
<!--actor/> not needed, all actors -->
<!--action/> not need, all actions -->
<!--organization/> not needed, all organisations-->
<!-- key field - this is an opt out of the things mentioned in purpose -->
<policyRule value="http://hl7.org/fhir/ConsentPolicy/opt-out"/>
<purpose>
<code value="HRESCH"/>
</purpose>
<!--dataPeriod> not needed, data from all periods -->
<!--data> not needed. Its all data, not any specifically referenceable items -->
<!--except> not needed, no exceptions-->
</Consent>
Did I miss anything?
Is policyRule the correct way to say that I don't want consent for the "purpose" (kind of important that this is interpreted as "no consent" rather than "consent")
Lloyd McKenzie (Feb 13 2017 at 16:27):
@John Moehrke ?
John Moehrke (Feb 13 2017 at 17:53):
Hi @Rik Smithies That is correct given the model we have right now.
Rik Smithies (Feb 13 2017 at 18:02):
thanks John. If a clinician asked a patient about consent and recorded this resource, where would I put the clinician who was involved? Its not the Consent.actor, that's for the consented (future) actions. Would it need Provenance?
Grahame Grieve (Feb 13 2017 at 19:26):
.actor.reference with actor.role = informat
Rik Smithies (Feb 13 2017 at 23:10):
So an actor (informant) can be about the act of giving the consent. That is what I need, but isn't what I expected. An actor can also be about what is being consented to? e.g. I consent to organisation X seeing my data (being a PRCP). In that case it refers to the future consented action, not the consenting action. So it seems as if these are actors on on different acts. Do we not need something like "targetActor"?
John Moehrke (Feb 14 2017 at 02:08):
I agree that the current consent model is confusing. We need people like you to provide comments (CR).
Rik Smithies (Feb 14 2017 at 17:06):
I'll add some :-)
Last updated: Apr 12 2022 at 19:14 UTC
