Stream: social
Topic: app recommendations (open-source?)
Ben Creasy (Nov 25 2018 at 05:25):
hi - I'm a software developer (https://github.com/jcrben), recently diagnosed with a chronic health condition and looking to totally own my medical records in a portable way - suggestions? also possibly looking to contribute to any open-source projects in that vein
Ben Creasy (Nov 25 2018 at 05:27):
looks like #patient empowerment is where I should hang out
Lloyd McKenzie (Nov 25 2018 at 06:02):
That stream is still in the warming up stages, but definitely a good place for you to be. And of course, hang out in #implementers as well for general implementation questions around writing code to access/analyze/manipulate your records.
mona saleh (Nov 25 2018 at 19:48):
I think one of the use cases that you can think of is (personal health record), that is a collection of all (electronic health records) grouped by you, while having the ability to add some data to the personal health record by yourself :)
Dave deBronkart (Nov 27 2018 at 17:41):
We should think about how to incorporate OpenNotes data. It's immensely richer than key-value pairs but unstructured.
Should I/we create an OpenNotes overview? Or has anyone?
John Moehrke (Nov 27 2018 at 17:59):
Yes. this is being worked under a broader topic of clinical-notes. The solution involves both DocumentReference and sometimes DiagnosticReport.
Dave Russell (Dec 04 2018 at 17:00):
Not specific to medical records.....but all about you owning your own data.......
https://solid.mit.edu/
Any use?
Grahame Grieve (Dec 04 2018 at 18:28):
my comments:
- linked data is a deceptively difficult idea. Uptake will reflect that
- decoupling application from data design - fails my Interop law #3 (see http://www.healthintersections.com.au/?p=55). No amount of TBL will change that
- that they've created a start up already .... sorry. I'm not going to touch it with a barge pole
Last updated: Apr 12 2022 at 19:14 UTC
